News & Resources

 Resources

United Heathcare Children’s Foundation – To all families who need some financial help inobtaining medical equipment and/or accessible vehicles that isn’t covered by your insurance, here is a great program to apply for. Your son/daughter needs to have healthcare coverage and be under 16yrs old. United Healthcare is there to help!  http://uhccf.org/apply_applicant.html

Valley with a Heart  Benefits (Northeast Pennsylvania Only) The mission of Valley With a Heart Benefits is to   inspire and encourage community involvement in the effort to help, aid and improve the quality of life for children inflicted with serious illness through monetary and spiritual support. http://valleywithaheart.com/ 

Variety Children’s Charity Need some help with special equipment or funding for an accessible vehicle.   http://www.usvariety.org/index.html

ACF offers funding for a variety of competitive and mandatory grant programs serving families, children, individuals and communities. http://www.acf.hhs.gov/grants

Presidents Choice – This grant for kids is dedicated to helping children who are physically or developmentally challenged.  The aim is to remove obstacles that make everyday living extremely difficult and to provide these young people with a renewed sense of dignity, independence, and freedom.  http://www.presidentschoice.ca/LCLOnline/pcccWhat.jsp

National Assistive Technology Technical Assistance Partnership (703) 524-6686 resnaprojects.org/statewide

Alliance for Technology Access  This site serves a national network of ATA technology resource centers. ataccess.org

State grants, financing and funding options. Ams Vans also has decent prices on used accessible vans http://www.amsvans.com/Disability_Grants_-_Help_Funding_a_Handicap_Van.article

Disabled Children’s Relief Fund http://www.dcrf.com/ordereze/default.aspx

LGMD2A Patients Register Here http://www.lgmd2a.org/

New Orleans Saints star Steve Gleason’s foundation helps families with ALS. The Gleason Initiative Foundation helps provide, coordinate and documnet extraordinary lifetime adventures for ALS patients.  By documenting these lifetime adventures, The Gleason Initiative helps ALS patients inspire others and thell their story to the world. http://www.teamgleason.org/

Baltimore Raven star OJ Brigance’s Foundation to help families with ALS. They strive to improve the quality of life for them and their families by providing needed equipment, resource guidance and support services, in addition to funding various research initiatives.  http://www.brigancebrigade.org/welcome

The Speak Foundation  The Speak Foundation is a non-profit organization dedicated to helping people overcome the challenges of physical disability or a serious health condition, by providing social support, advocacy, and financial assistance both in the United States and internationally (e.g. sponsorship of orphans with disabilities). http://www.thespeakfoundation.com/

Beyond Labels & Limitations raises money for research dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A and to educate on the disease course and associated struggles of Limb-Girdle Muscular Dystrophy 2A, as recounted through my personal experiences. http://www.beyondlabelslimitations.com/ 

Coalition to  Cure Calpain 3 provides support for promising research into finding treatments  or a cure for limb-girdle muscular dystrophy, type 2A/Calpainopathy  (LGMD2A). http://www.curecalpain3.org/

 

 

 

News

 

Following our 3rd Annual Celebrity Game, one of the videos from the Dunk Contest which was filmed by Thomas Litteer @LL6_CEO showed Pat the Roc kicking an alley-oop to G. Smith called “Incredible Soccer-Inspired Alley-Oop” went viral. This video was showcased on ESPN, Sports Nation, PTI, DLHQ, Good Morning America, MSN, Yahoo, Fox, Ballislife, Worldstar and many other sports websites. So much worldwide publicity surrounded the event and video that it has climbed to over 1.6 MILLION views on YouTube in 48 hours. It was a very close dunk contest with talented stars like: Porter Maberry, Issac White, Jamil Drummond, Sean Bieski and Steve Ware, BUT with that Dunk, Gary Smith took home the Dunk Contest title. Many of the pictures and video can be found on our website, Facebook page and Twitter. See for yourself!

VIDEO: Incredible Soccer-Inspired Alley-Oop – http://youtu.be/CtZ2byyoThg

Steve and Team Gleason raised over 300K at the Gleason Classic! Check out the amazing video!
http://www.teamgleason.org/featured-videos/

We interviewed with Monica Madeja on the set of PA Live and talked about the foundation and Celebrity Basketball Game! 4.27.12 Here is the VIDEO http://pahomepage.com/palive-details?nxd_id=244302

We also interviewed with Ken Cara and WYLN TV35 Hazleton, PA and talked about the Celebrity Game and the LIL’ Dunkers BBall Clinic! 4.26.12 VIDEO http://www.facebook.com/#!/photo.php?v=444761305540046

WYLN TV35 Sports Recap with the Clifton R. Lewis Good Life Foundation
http://www.facebook.com/photo.php?v=447962551886588

Here are some  video highlights of the 2nd Annual CRL Good Life Celebrity BBall Game & Dunk Contest http://youtu.be/molhM0NbCo4

The Sunday Dispatch is fired up for the 2012 CRL Good Life Celebrity Game Dunk Contest! Click the link below and check it out!http://psdispatch.com/stories/Nanticoke-High-School-hosts-slam-dunk-contest,138939

The amazing story of Steve and Team Gleason
http://youtu.be/LSS10h0BKig

NBA commentator Chris Corrino talks about his battle with FSH http://www.thepostgame.com/commentary/201105/nba-announcer-chris-carrino-battles-fshd-muscular-dystrophy

Coalition to Cure Calpain 3 is striving to cure LGMD2A and learn more here….
http://www.curecalpain3.org/

 

Want to go fishing in beautiful Ft. Lauderdale FL? Have MD? We got the way, check out Armchair Anglers!
http://www.armchairanglers.org/

 

The Virginia G. Piper Sports and Fitness Center for people with disabilities is coming to Phoenix, AZ soon!
http://bcove.me/g8jd3ci6

 

Nationwide Children’s Hospital Named MDA Research Center – Dr. Jerry Mendell $7 million grantee
http://quest.mda.org/news/nationwide-childrens-hospital-named-md-research-center

 

Nanticoke Native Raises Funds For Muscular Dystrophy Research – Clifton R. Lewis Good Life Foundation
http://citizensvoice.com/news/nanticoke-native-raises-funds-for-muscular-dystrophy-research-1.994538

 

Northeast Woman’s Battle Against MD – Donna Sutton of Swoyersville, PA
http://thetimes-tribune.com/lifestyles-people/northeast-woman-donna-sutton-1.1050987?sms_ss=facebook&at_xt=4cc430de98148894%2C0

 

Advances in Duchenne Muscular Dystrophy Gene Cell Therapy
http://quest.mda.org/article/advances-duchenne-muscular-dystrophy-gene-therapy